About Initiative

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The Patient and HCP Education & Awareness Working Group was created in 2020 as part of the From Testing to Targeted Treatment (FT3) program, and specifically, it is organized around the following the high-level strategic goals:

  • to empower patients and HCPs with resources that are accessible, adaptable, and targeted in order to make informed decisions; 
  • to build awareness of existing evidence and new value cases to articulate and disseminate the value of precision medicine.

The objectives and operational work-plan were co-created with the support of the contributors (belonging to different stakeholder groups, incl. Patients, POs, Industry, Academia) and approved by the Board members. 

Time line

Currently underway

People

Begoña Nafría Escalera

Patient Expert Reviewer en Research Involvement and Engagement Journal

Esplugues de Llobregat, Spain

Sant Joan de Déu Research Foundation / From Testing to Targeted Treatments (FT3)

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Nicole Wicki

Program Manager at The Synergist

Switzerland

The Synergist / From Testing to Targeted Treatments (FT3)

Silvia Bornengo

Program Coordinator

The Synergist / From Testing to Targeted Treatments (FT3)

Susan McClure

Chief Executive Officer, Genome Creative

Garland, United States

Personalized Medicine Coalition (PMC) / Genome Creative / From Testing to Targeted Treatments (FT3)

Organizations

Resources

PEOF 2020 recording - From diagnosis to treatment and beyond: personalized medicine – what’s in it for patients and understanding patient needs to make it a reality?

26 Mar 2021 Video

PEOF 2020 slides - From diagnosis to treatment and beyond: personalized medicine – what’s in it for patients and understanding patient needs to make it a reality?

29 Sep 2020 Other